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January 25th, 2009 at 11:14 am

Doctors in Missouri

Anjali M. Bhorade, MD
Center for Advanced Medicine
Eye Center
4921 Parkview Place, Suite C, Floor 12
St. Louis, MO 63110
(314) 362-3937
Fax:  (314) 362-3725
 
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Dr.William M. Hart., PhD
Eye Center
Center for Advanced Medicine
4921 Parkview Place, Suite C, Floor 12
St. Louis, MO 63110
(314) 362-3937
Fax:  (314) 362-3725

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Joseph Giangiacomo, MD
Mason Eye Institute
One Hospital Drive
Columbia, MO 65212
(573) 882-1027
(573) 882-1506

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    Amber,I am in tears after reading your tube weannig posts! My little Annabel has been Ng tube fed for the past three months ( she is almost 1 year old). She has neuroblastoma cancer and no longer wants to eat since going through chemo.Everyone thinks I’m nuts for being so worried about her not eating, but as you know it’s heartbreaking to watch your baby not want to eat. I have been doing a lot of tube weannig research, because I am eager to get her off the tube once we are done with the cancer treatment. I have been happy to find success stories from families going to Seattle Children’s (we live in Kirkland).I swear I could have written some if your posts! Annabel has always been a poor eater due to reflux and milk protein issues. At three months old I switched from breast to Alimentum. I had to give up 15 GALLONS of breast milk I had pumped for her. I have always read into our pediatrician visits regarding weight, as A has never been on the growth chart. So, it was no surprise to me that A no longer gained weight and stopped eating during chemo.I just want to thank you so much for posting everything you guys went through. I just can’t tell you enough how much I can relate to you. I got to the point with her eating that I had terrible anxiety that I almost couldn’t function. I certainly have a love/hate with the Ng tube, but I know with hard work we will get through this difficult time.Thank you!

    Kristina on December 25th, 2015

 

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